Families of children with disabilities in Spain are facing considerable difficulties during the summer months as they struggle to find suitable camps and educational facilities. Patricia Cavanillas, mother of a 14-year-old with a rare disease (in image), shares her story of trying to balance work and care. She notes that her daughter experiences significant regression due to the extended break from structured activities and support.

Many parents, particularly those involved with the Asociación Nacional del Síndrome idic15, are advocating for schools to remain open year-round. They argue that continuous educational support is crucial for their children’s development and well-being. These parents have launched a petition to push for legislative changes that would ensure year-round educational facilities and support for children with disabilities.

The lack of accessible summer programs and closed educational institutions creates a stressful environment for families. Parents must juggle their work commitments with the need to provide constant care and stimulation for their children. The situation often leads to increased stress and emotional strain on families, who feel unsupported by the current system.

The petition highlights the urgent need for reforms to better support families of children with disabilities. By keeping schools open throughout the year, parents believe their children will have a better chance to maintain their progress and development, reducing the long-term negative impacts of extended breaks.

Read full article in Spanish at: https://www.telecinco.es/noticias/educacion/20240729/menores-discapacidad-verano-campamentos-aulas-cerradas-familia_18_013131751.html?amp=true

Patricia Cavanillas and her daughter. Souce: Telecinco.es